DOWN SYNDROME AWARENESS MONTH // books


One of the greatest resources in processing through Lindie's diagnosis and educating ourselves has been in reading books.

I love to read. I love a good story. So naturally, stories and informational books have been so helpful. Below is a list of books I have read so far, although there are so many more I would like to read.

I will say that shortly after Lindie was released from the NICU I went to our local library and tried to find books relating to Down syndrome and the only books I could find were specifically targeted to certain therapy practices and they were geared more toward older children. I was pretty disappointed in that, because I am a big fan of my library.

That being said, here are some book recommendations:
  • Babies with Down syndrome: A New Parent's Guide by Susan J. Skallerup: If you're looking for an informative book, this is definitely the one for you. Packed with information this book is helpful if you're ready to dive in. If you're still not quite there yet it could be a bit overwhelming, especially in the medical chapter. (I just skipped that until I was ready). Be sure to get the latest copy of this because so much research is new in the field of Down syndrome, so older copies are out of date.
  • The Parent's Guide to Down Syndrome by Jen Jacob and Mardra Sikora: I read this book on my way to the DSDN Rockin' Moms Conference in September partially because I wanted to learn more but also partially because I was fanning over Jen (founder/spokesperson for DSDN) and Mardra (who I met at the conference). I learned more in reading it at it wasn't quite as overwhelming as the first book above because it didn't have quite as much medical information.
  • Bloom by Kelle Hampton: This was the first story I read after Lindie was born. I finished it while she was still in the NICU. It was such a raw and relateable book for me. I felt encouraged by Kelle's words and it's full of lots of great pictures. 
  • A Good and Perfect Gift by Amy Julia Becker: This was the second story-themed book I read also while Lindie was still in the NICU. It was relateable, like Kelle's, and written from more of a biblical and journaling perspective. Such a good read!
  • The Lucky Few by Heather Avis: So good! This is the story of The Lucky Few Crew, a husband and wife duo who adopted three children, two who have Down syndrome and their journey along the way.
  • An Uncomplicated Life by Paul Daugherty: This is my current read. Life is crazy busy right now so reading takes a back-burner on my priority list, but it's really good. I also love that it is written from a father's perspective because all of the other books I have read are written by a female.
What are your favorite books? What other recommendations do you have? I know there are other great ones out there. I would love to put them on my Christmas list. Please share!

1 comment:

Adelaide Dupont said...

Gary Bender's FROM GRIEVE TO CELEBRATE.

And I write about books in several of my posts like "Poetry and Connections" at Halfway up Rysy Peak.

When I was 13 I wrote a book called CHEWING GUM FRECKLES, which you are probably the first person in America to know about.

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